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“I am only one,

But still I am one.

I cannot do everything,

But still I can do something;

And because I cannot do everything,

I will not refuse to do the something that I can do.”

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MUSIC & MISC.

Wow ... just wow.

 

A very emotional acoustic version of 'We're Not Gonna Take It' by Twisted Sister's Dee Snider.

 

Video directed by Criss Angel.

 

Same issues worldwide!

 

Coronation Street broached the subject of neuroblastoma at the end of 2015 – but it didn’t go down too well with people who have had experience of the disease.  The below is from www.dailypost.co.uk

 

The recent storyline on Coronation Street about a five year old girl with neuroblastoma has come under fire from Daily Post readers after show bosses were accused of 'watering down' the nature of the illness.

 

Yesterday, Debbie Hall from Towyn in Conwy, spoke of how she nearly lost her three-year-old son Devon, who has severe form of the rare cancer, several times and believes the storyline is not an accurate representation.

 

Readers took to the Daily Post’s Facebook page to voice their concern over the way neuroblastoma is being portrayed after watching the progress of the character Hope Stape.

 

Joanne McQueen wrote: "Not happy with the Coronation Street storyline at all it's been well and truly sugar coated! Think I'll be turning off it's insulting! My son was diagnosed with stage 4 high risk neuroblastoma in 2012 and I've seen many families go through the same and Corrie is making a mock of it. I certainly wasn't dressed up in a friend's party after being told my baby had cancer!"  She added, however: "But awareness of neuroblastoma is more awareness we didn't have."

 

Nicola J Jones said: "All I know is some people really should think before they write, it's close to a lot of people's hearts/lives. This is why it has been slated and I for one have slated it!! Strong love and hugs to those who are suffering and to those who have sadly lost xx."

 

Many readers shared their harrowing personal experiences.

 

Eleri Fon Roberts wrote: "I have to be honest as a paediatric oncology nurse I feared for the storyline. I understand full well how this affects families and hoped they would take into consideration the families that are experiencing this now - and for those who have been there previously.

"So far, I am sorry, but this is definitely not a true reflection on any of the care. However, the fact that neuroblastoma is being discussed is something I guess. Coronation Street please get it right though for all the families going through, and have been through, the trauma of the condition."

 

Mary Power said: "My grandson was diagnosed in 2011, when he went for his first appointment with a paediatrician he never came home for six months. He was ill for about 6 weeks before being diagnosed. My daughter and son in law never went to the pub, never went to work, the Coronation St storyline is an insult to neuroblastoma families and children."

 

Laine Jessop said: "The awareness is getting out there but I think I would rather it be an accurate account not the one I've seen so far xxx"

 

Kelly Feeney said people should try going on an oncology ward because "no mother should ever see this".

 

Kay Debra Mcshane, however, praised the programme.

She said: "The programme is raising awareness. I for one had never heard of it before the show."

 

Deborah Anderton said: "We lost our son Alex to Leukemia in 2004 aged 7. The pain of losing a child to serious illness is indescribable. When it first happened we hated cancer charity adverts on TV reminding us of our loss.

"But now time has moved on and our grief has moved on. Soap story lines reflect lives blighted by all kinds of illnesses and death. It gets people talking and gives chance to discuss further these situations and empathise. Hence the wonderful charity work done as a result."

 

The Daily Post has asked Coronation Street producers ITV for a comment.

 

October 7th 2016

 

Kate is 11years old.

 

She lives in Florida.  

 

 

 

 

 

 

 

In her mum's own words:

 

"Crushing blow today. Kate's scans show increased tumor size in her leg, lungs, and abdomen as well as several new tumors in her liver, kidneys, and adrenal gland. The speed of disease progression is terrifying. We have been advised to stop the virotherapy trial and begin a new immunotherapy treatment, to try to get control over the tumor growth. Unfortunately, we can't go home to Florida yet, because our city is under mandatory evacuation due to Hurricane Matthew. So, we will remain in Ohio while we transition Kate to a new treatment and wait to assess damages at home in Florida. Devastated."

Kate, Florida

UPDATE

 

Kate died on November 30th, 2016, 2 weeks short of her 12th birthday.

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