By Guitars 4 Good, Sep 27 2017 03:54PM
Below is a post I today put on the Guitars 4 Good Facebook page.
Something came to light a few days ago due to my own fundraising attempts. A friend of mine said that people questioned why fundraising was continuing for Mia Chambers when they have more than enough needed for her to have treatment.
I hope therefore this post helps people to understand the nature of fundraising a little more, and why it still has to continue after the child in question has enough funding for *initial* treatment.
I shall use little Lottie (one of the children featured on the G4G website) as an example.
Lottie has been fighting neuroblastoma since June 2016 when she was diagnosed at just 2 years old.
Earlier this summer she was declared in remission. Sadly however, for Lottie and the other children in her situation, the fundraising need does not end there!
You see, children with neuroblastoma in particular have a high chance of relapse. If and when that happens they need to have funds in readiness for urgent treatment.
In Lottie’s case, her family and Solving Kids Cancer (who focus on children with neuroblastoma) made the decision in August to start an urgent fundraising appeal to enable her to have a clinical trial vaccine (in New York) to reduce greatly her chance of relapse. Sadly, Lottie currently has an 85% chance of relapsing!
The below link, to Lottie’s page on the Solving Kids’ Cancer website, will explain the nature of her illness and why funds are still needed – but here is a quote from that page:
“Relapse rates for neuroblastoma are high, and the survival rate for relapsed neuroblastoma is less than 10%. This statistic worsens with every relapse. Relapsed neuroblastoma is particularly challenging to treat and there are limited options to treat it; all of which exist in the form of clinical trials, some in the UK and some abroad.”
In her parents’ own words from Lottie’s Facebook page:
“We have been fundraising for a while, however this is becoming increasingly urgent, and we have 5-6 weeks to raise the remaining 130K, as Lottie needs to fly to New York in October.
We must have the funds in place by the end of September in order for her to receive treatment.
We need to act quickly, if Lottie relapses she becomes ineligible for the vaccine.”
It’s not a simple disease. It’s not as simple as ‘take some medicine, get better, end of story’. It does not end there. Their fight continues for quite some time.
Attached to this post is a photograph of something that Lottie’s family put on Twitter yesterday. Please note what they say:
“Funds will be kept in Lottie’s name for 5 yrs!! After that, the monies will be used for research into neuroblastoma”.
I hope this post helps people to understand why fundraising continues for Mia Chambers, Lottie and other little ones in the same situation.