“I am only one,
But still I am one.
I cannot do everything,
But still I can do something;
And because I cannot do everything,
I will not refuse to do the something that I can do.”
My name is Kian Musgrove, I am 4 years old, I am fighting a very agressive cancer called Neuroblastoma (stage 4 high risk with MCYN amp) I was first diagnosed with this nasty disease at 18months old and I am still fighting it today!!
When I was 18 months old I had 27 tumors in my bones, bone marrow, lymph node and a huge one in my adrenal gland (above my kidney). I was treated with chemotherapy, a huge operation to remove the main big tumor, stem cell transplant(bone marrow transplant), radiotherapy and immunotherapy(CH1418 -without IL2) - I became NED (no evidence of disease) and about 9 months after I had extreme pains in my elbow and it was swollen so big I couldn't move it.
Scans detected THE CANCER CAME BACK (elbows, knees, ankles, chest bone, skull bone and rib), so I'm now fighting it all over again but unfortunately only some of the treatment for relapse is available here in the UK and the rest is in USA so i have to go to USA for the rest of my treatment, BUT THE TREATMENT IS NOT FREE, IT IS VERY EXPENSIVE, some good news and some not so good news, I've now had all of the available treatment here in the UK and I'm now doing the trips to USA every 2-3 weeks!
The treatment plan in USA is costing just under £600,000!! This money has been raised BUT now it's been paid for I now only have £72,000 left and MSKCC (Momorial Sloan Kettering Cancer Center - USA) said I will most likely need to pay a lot more as when I am going through my treatment I will most likely become very poorly off the treatment which means I will be admitted and need to be cared for, and need other drugs and equipments to get me better and the money I have just paidd does not cover these costs (inpatient stay for 7days cost $50,000 - we have already been admitted once for 3 days!!).
I also need funding for accommodation while we are out there, we will be travelling back and forth from UK to USA many many times for around 1 - 2 years so it is going to cost a lot!!
ONLY YOU CAN HELP ME!! PLEASE PLEASE DONATE AND SHARE MY GOOD CAUSE AND MY PAGES (Facebook, Twitter & Instagram, all under "Caring For Kian")
THANK YOU SO MUCH IN ADVANCE, Love KIAN, my big sister Katie(age 6), my mammy (Kat) and all of my lovely family. All of your support means the world to us all.
Any questions? Please email firstname.lastname@example.org THANK YOU.